https://t.co/M8LV8SHv6r pic.twitter.com/21Ja6TOtjH. "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness.". Engel and Bush met privately in February 2007. We will keep fighting for you.". Richard Engel announced the death of his 6-year-old son Henry after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. Were so close. When Zoghbi uncovered that Henry was the first person observed to have his particular mutation to the MECP2 gene, she needed to do more research, so she recommended Henry be seen at Texas Childrens Hospital, where doctors could treat and track his symptoms to see if they followed the usual path for Rett syndrome. The NBC News chief foreign correspondent said his son, who has a rare genetic disorder, has "taken a turn for the worse. Henry was diagnosed with Rett syndrome, a genetic brain disorder that does not have a treatment or cure, as a toddler. The institute's Dr. Huda Zoghbi, who studied Henry's mutation, called him "special in so many ways. Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease, Engel continued in a follow-up tweet, providing a link to Texas Childrens Hospital, which is fundraising for the cause. Then we realized it was a genetic condition, and hes not going to get over it.. We don't want any other child to lose their life. Henry Engel: Truth About Richard Engel's Son And His Rare - JukeBugs 13,572, This story has been shared 12,221 times. Published on August 18, 2022 11:33 AM. Here's how. The Engel family brought Henry to the hospital's Duncan Neurological Research Institute (Duncan NRI) in 2018 to seek additional answers. Many of the people who work in the lab were also devastated by Henrys passing, but they were quick to tell Zoghbi, Were going to continue to work. At age 13, he joined a wilderness survival camp where he learned about leadership and how to be more independent. What is Rett Syndrome? Richard Engel's son has rare genetic disorder We will continue to push as hard as possible to develop treatments. NBC News chief foreign correspondent Richard Engel, who for years has been open about his son's journey with Rett syndrome, announced Thursday his 6-year-old boy has died. Because of Henrys unique mutation, Zoghbis team is using Henrys cells in ongoing research. [29] Engel reported on events from different perspectives by gaining and maintaining frequent access to U.S. military commanders, Sunni insurgents, Shiite militias, and Iraqi families. [3] He speaks and reads Arabic fluently and is fluent in Italian and Spanish. Engel also provided a link tothe Texas Childrens Hospital, which is fundraising for the cause. ", "His condition progressed and he's developed dystonia: uncontrolled shaking/ stiffness," he shared. After sequencing was performed on Henry, it was discovered that he had a mutation to the gene involved in Rett syndrome. In 2018, Engel recalled the shock of learning that his son will likely never be able to perform tasks such as walking or dressing himself. Richard Engel opens up about touching milestone for son who has Rett syndrome March 15, 2019 02:42 Engel also revealed in a first-person essay in March that Henry called him "Dada" for the first . [50] In April 2013, Engel recounted his experience in a Vanity Fair editorial, titled "The Hostage". [38][39][40], Engel reported on Firebase Restrepo and the soldiers of Viper Company stationed in the Korengal where he showed the fierce firefights taking place between U.S. soldiers and Taliban forces. NBC News presenter Richard Engel has penned a tender tribute to his young son, a month on from his tragic death at six years old. Its not just delay. Richard Engel shares heartbreaking update about son Henry - Yahoo News TODAY's Savannah Guthrie shared her condolences with Engel and his wife, Mary. He had the softest blue eyes, an easy smile and a. 2023 FOX News Network, LLC. [37], Engel frequently traveled to Afghanistan to report on the situation between U.S. forces, the Afghani people, and the Taliban. Zoghbi attributes in part to his parents the fact that Henry lived longer than most boys with the disease. Born on Sept. 29, 2015, Henry was slow to reach certain developmental milestones as an infant. He attributed his attraction to journalism as "the prospect of learning about new subjects and having the privilege of riding the train of history rather than watching it pass". After developing dystonia, uncontrollable shaking and muscle contractions, his underlying health conditions got much worse, and soon, "it was too much," Engel said. I worked 16 years to find the (MECP2) gene. We gather on our bed several times a day for what we call 'cuddle parties,' where we kiss him, rub him, praise him (he loves to hear his name and be praised) and curl his thick, gorgeous hair in our fingers," he wrote at the time. Soon after sharing the first video, Engel tweeted another sweet photo of Henry sitting up and looking at the camera. Youre my heroes," she wrote. NBC News' Richard Engel's son Henry dies at age 6 - FOX 29 News With regular therapies to keep his body moving and his mind active, he was making progress. NBC News' Richard Engel says his 6-year-old son, Henry, has died [14] He first lived in a ramshackle seven-story walk-up, learned Egyptian Arabic and worked as a freelance reporter in Cairo for four years. [21], Engel reported on the Israel-Gaza conflict of 2012, the continued violence stemming from the revolution in Syria and its consequent civil war, and the political transition of Egypt following the election of President Mohamed Morsi in June 2012.[22][23][24]. But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.. [4], In May 2015, Engel married producer Mary Forrest. He had the softest blue eyes, an easy smile and a contagious giggle. 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All Rights Reserved, Richard Engels wife details spending time with late sons body after his death, Hoda Kotb gets emotional honoring Richard Engels late son Henry, Savannah Guthrie honors Richard Engels late son, Henry, with touching tribute, Richard Engels son Henry dead at age 6 after battling neurological disorder, Nick Cannon celebrates Jada Pinkett Smith's 'Red Table Talk' cancellation: 'Good', Chance the Rapper's wife posts cryptic quote after his dance with another woman, Meghan Trainor 'can't walk' after 'nightmare' sex with 'big boy' Daryl Sabara, Famed New York socialite Patty Raynes found dead in her Palm Beach home, New photo of Meghan Markle that she 'never wanted the world to see', Michael J. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. Richard is 49 years old. [46][47], Engel traveled into Syria repeatedly with rebel militias and the Free Syrian Army. For the age expectancy of people living with Rett . The mutation causes Rett syndrome, "a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the hospital said. Do Not Sell My Personal Information, Click to share on Facebook (Opens in new window), Click to share on Twitter (Opens in new window), Click to email a link to a friend (Opens in new window). [52] In April 2015, NBC had to revise the kidnapping account, following further investigations by The New York Times, who had conducted several dozen interviews, suggesting that the NBC team "was almost certainly taken by a Sunni criminal element affiliated with the Free Syrian Army," rather than by a loyalist Shia group. We couldnt be more in love. It also caused numerous underlying health conditions including impacting his breathing," he continued. [51], Engel's account was however challenged from early on, with Jamie Dettmer of The Daily Beast citing unnamed sources, who believed Engel and his team had been kidnapped by rogue rebel groups opposed to Assad. Sitemap, Your California Privacy Rights "Our beloved son Henry passed away. [53], Engel was married to a fellow Stanford student; the couple divorced in 2005. Hoda Kotb, Savannah Guthrie brought to tears as NBC's Richard Engel and Richard Engel (born September 16, 1973) is an American journalist and author who is the chief foreign correspondent for NBC News. Its something we never saw with Henry. Terms of Use RELATED: What is Rett syndrome? Mutual Fund and ETF data provided by Refinitiv Lipper. Engel and his wife are also parents to son Theo, whom they welcomed in August 2019. It was an exciting Labor Day at Richard Engel's house. She believes Henrys cells could be the key to finding a cure for the illness, which causes severe impairments, affecting nearly every aspect of the childs life: their ability to speak, walk, eat, and even breathe easily,according to the International Rett Syndrome Foundation. ", Richard Engel opens up about touching milestone for son who has Rett syndrome, according to the National Institute of Neurological Disorders and Stroke, Rett syndrome: Meet the doctor trying to create a cure. Engel is the host of the MSNBC special series On Assignment with Richard Engel, which won a 2019 Peabody Award. [42], Engel reported extensively on the Arab Spring movement. [38][39][40] Engel produced "Tip of the Spear", a series of NBC reports on the hardships and dangers faced by American soldiers, for which he won a 2008 George Foster Peabody Award. She recalled that losing Henry was one of the hardest days for her and her research team. Richard Engel's son Henry dead at age 6 after battling neurological disorder By Francesca Bacardi August 18, 2022 | 11:34am Richard Engel announced the heartbreaking news that his son. "Hes healthy, happy (unless you unwrap his swaddle) and thirsty. So if its not functioning at 100% capacity maybe its functioning at 40% capacitymaybe if we can increase the amount of the protein, maybe that will get us to help some of the symptoms., [Henry] became a driving force in the lab because the lab members met him and knew him and played with him, she added. Richard Engel Gives Update on Son Henry amid Coronavirus Pandemic - People This is how we will honor his life. Richard Engel Bio, NBC, Age, Height, Family, Wife, Salary, Net Worth [They] really worked very hard to protect him and give him physical therapy so that he could be as functional as possible, she said, adding that many boys with Rett syndrome die by age 2. Engel is known for having covered the Iraq War, the Arab Spring and the Syrian Civil War. IE 11 is not supported. The news of Henrys passing came just months after Engel revealed his sons health had taken a turn for the worse., For everyone following Henrys story, unfortunately, hes taken a turn for the worse, the NBC News correspondenttweeted back in June. It was fun. Nope, none. Richard Engel's youngest son takes his 1st steps - Today Fox News Flash top headlines are here. [13], He later went to Stanford University, where he occasionally wrote for The Stanford Daily. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo, he shared. Henry was born with a variation of Rett syndrome, a rare genetic disorder that starts with normal early development, which then starts to slow usually around 6 to 18 months of age, causing loss of use of the hands, problems with walking and intellectual disability, according to the National Institute of Neurological Disorders and Stroke. Thats really my last memory during his last visit., This is the memory Ill always hold dear because he reacted to the books we gave him and the toys. [15][16] He filed a number of reports from Lebanon during the 2006 Lebanon War. Engel told PEOPLE in 2019 that Henry was "lacking a conductor gene" and that a medical team at Texas Children's Hospital was "trying to build a treatment that could help immensely.". The award-winning Engel has been with NBC News since 2003 and became its chief foreign correspondent in 2008. ", "We have a vendetta against the syndrome and we want to cure it," Forrest said about the disease. [41] His coverage focused on the challenges of free elections in Afghanistan and the disruptions to democracy in the country. Through a genetic test, doctors learned he had a mutation to his MECP2 gene. He had the softest blue eyes, an easy smile and a contagious giggle. Henry Engel died in August 2022 at the age of six. He had the softest blue eyes, an easy smile and a contagious giggle, the journalist, who is married to Mary Forrest,tweeted at the time. [48][49], On December 13, 2012, Engel and his five crew members, Aziz Akyava, Ghazi Balkiz, John Kooistra, Ian Rivers and Ammar Cheikh Omar, were abducted in Syria. On his tribute page, Henry is described as someone who "made the best of every single day and worked tirelessly in his many physical and developmental therapies.". ", Sophie Reardon is a News Editor at CBS News. 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